The Addison Family Fundraiser
Our Goal: $500:raised $110
Last year we found out at my twins’ anatomy scan that Ryker had CDH and a heart defect. Our MFM doctor encouraged us to terminate Ryker and let his twin, Luka, have a safe single pregnancy. We were heartbroken, not yet knowing that there were other options. God is amazing and that same day, my friend connected me with another CDH mom who guided me to a CDH Facebook group. After sharing our findings from the doctor, at least 100 parents shared their successful stories of their children who were also given very little to no hope. We decided there was no way we could terminate one of our babies and even if we didnt get him for long, it would be better than nothing at all. Ryker was born with a third congenital birth defect, EA/TEF. His trachea and esophagus were not attached correctly at birth. The twins are now almost 6 months old. He had his CDH surgery at 2 days old, his EA/TEF surgery at 10 days old, has since had g/j tube surgeries, a heart cath, trach surgery, and has his heart surgery in the next few months. He’s had a long road, and still has some fighting to go, but he is amazingly strong! He is a huge blessing to our family!!! And more than anything else, we have full confidence in God’s faithfulness and know he is guiding Ryker’s path. Thank you to Tiny Hero for being a source of information and hope in a time when we initially had none. I want all parents to be aware - THERE IS HOPE!!
WHY TINY HERO?
Tiny Hero is a CDH organization that informs parents not only of stories of hope, but they educate parents how to interview potential hospitals. They helped us to know more about CDH, what questions to ask, what information was critical to know about the hospital in question. Most people have no idea what CDH is when their child is diagnosed and don’t know where to start. Tiny Hero was a huge resource for us and was very instrumental in helping us find the best care for our son.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.