Adilyn's CDH Fundraiser
Our Goal: $350:raised $95
It will be a day we will never forget. Diagnosis day, October 30, 2017. I was so excited to see our baby on the sonogram and to wear my pumpkin pregnancy shirt the following day. We sat in the ultrasound room completely speechless when the doctor told us the findings were left sided congenital diaphragmatic hernia. We left our appointment being told our love bug had 50% survival rate with many unknowns. The one statement that sticks out from the appointment and will never be forgotten is, " you have up to 24 weeks to terminate in the state of Massachusetts." From that point on we knew we embarked on the fight of our lives. The fight to save her life and find the very best care for our daughter. We started searching, worldwide for the best programs. In conjuction with my cousin, we came across John Hopkins All Children's Hospital in Florida. We faced some hurdles in relocating but worked hard to make it happen. We were looking for the highest skilled medical team with the best outcomes and continuity of care. Adilyn arrived March 19th, 2018, she spent 12 days on ECMO and 47 days in the hospital. A day before Mother's Day our love bug arrived home to Boston!
WHY TINY HERO?
We are humbled and forever grateful for the support of Tiny Hero. Help us support CDH babies and their families so they can receive the best care possible! Every baby deserves a chance, so lets make it the best chance possible!
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.