The Barker Family Fundraiser
Our Goal: $250:RAISED $95
Looking at me now, it’s hard to believe I spent the first 13 months of my life in the hospital! I was born with CDH and CPAM. CDH stands for congenital diaphragmatic hernia. I had my stomach, bowel, and liver in my chest and a mass on my left lung (CPAM). Although it all sounded really scary, our doctors at Cincinnati Children’s never lost hope! After I was born I spent 25 days on ECMO, two months ventilated, and 10 months on high flow oxygen of 4 liters. Just about the time I was getting strong enough to come off high-flow, I caught my first cold. For most kids this wouldn’t be a big deal, but for me and my little lungs, it was huge. I ended up back on the ventilator and eventually it was decided that a tracheotomy was my best option. The trach was scary at first, but then I realized it allowed me to smile even more and enjoy more “normal” things. The trach has allowed me to sit up, play, and do all the things I wanted to do, but couldn’t while on a ventilator. Finally at 13 months old I was able to go home! I was so excited to finally sleep in my own crib and play with my brothers! I was home for 2 months before I became sick again and we discovered I had reherniated. It was a really good thing I had my trach because it saved my life. Without it I would have gone into respiratory distress. I recovered great after surgery and now have another scar to show how strong I am! I am so thankful for Cincinnati Children’s. Without them I may not be here today!
WHY TINY HERO?
We love everything that Tiny Hero stands for. The positivity that Tiny Hero brings to families is truly remarkable and just what families need, during a time they need it the most. I am so happy to have found Tiny Hero and will continue to stand by the organization to provide support and positivity to other families that are just beginning their CDH journey. Receiving a CDH diagnosis is devastating, and having an organization to help is so important - from what questions to ask or even financial help for families who need to relocate in order to receive the best care. In our case, I am so thankful for Tiny Hero and the uplifting support they’ve given us!
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.