The Benny Silla Family Fundraiser
Our Goal: $500:raised $995
"I, um, I think the baby has a diaphragmatic hernia. Let me call the doctor in." I was then referred to a second ultrasound at a local hospital with the director of Maternal and Fetal Medicine. He was grim, and made sure to remind me of time constraints of termination. I felt gutted. We then traveled to Rochester, NY for more specialized care. Again, we were reminded of our baby’s grim odds, especially if he were to need ECMO. They were not willing to do the repair surgery while on ECMO had he needed it, which they were sure he would. I kept thinking why was every doctor we met with not trying harder to reassure me that they were going to fight for our boy? Instead, they made me feel as if I was in the wrong for refusing termination, and for asking questions trying to prepare for what was next. I was told to "relax" and to "not research too much, it's not good for you with this condition." I didn't stop researching. They gave me the fuel to spend every minute finding others who were going through what we were, to find survivors, and to find a doctor who cared enough to give our boy a fighting chance. Then we found Dr. Kays. He gave our boy a 95% survival rate. Benjamin had his stomach, spleen, small and large bowel, and over 20% of his liver in his chest cavity. Benjamin was born December 18, 2017. He spent 40 days in the hospital, was discharged on minimal medications, and is now a happy, healthy, and active CDH survivor.
WHY TINY HERO?
Tiny Hero strives to give parents the tools to become the best advocates for their babies. Whether it’s a support system, knowing which questions to ask their doctors, or monetary help to allow parents to travel for the care they want for their babies. Tiny Hero is there for them, when they've just been let down by so many medical professionals not offering hope for their baby.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.