The Burr Family Fundraiser
Our Goal: $500 : RAISED $230
While on vacation last February I got a call that changed our lives forever. I had just had my 20 week anatomy scan before we left. Up until then, we had only thought of the anatomy scan as a time to confirm the gender. We were so excited to have a little boy on the way. We felt so lucky to be blessed with a girl and a boy. When the call came in, it was a nurse. She said they wanted me to come back in for specialist to do another scan. I asked why and nonchalantly the nurse said, "they think he has diaphragmatic hernia..." like it was nothing. I asked her what it was and if it was serious. She said she didn't know but that they only thought he may have it, so not to worry. Quickly I started googling, and realized the seriousness of the situation. At home, my high risk doctor confirmed the diagnosis and went over my options, offering termination. Over and over I would hear the word termination and that I only had so much time before it would be too late. I was told he would probably have other things wrong with him and would never be able to play sports, develop like other children, and would have many issues. Regardless, Preston and I decided to not terminate and fight for our little boy. After looking up support groups, I found the organization Tiny Hero who told us about Dr. Kays in Florida. We read so many success stories and talked to other parents. We decided it was our only option. After months of fighting our boy is home and doing well! We will forever be grateful!
WHY TINY HERO?
This organization helps so many families that are faced with CDH. It's a life changing, very scary thing to find out your child has. This organization started our because they were a family just like us that received the same news about their child. Dr. Kays and his team saved their child. They dedicated their lives to helping others. Without them, we may not have gone to Florida. They saved our boy's life by reaching out to us as they have helped so many others. They are definitely a worthy organization that I will forever donate to.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.