The Carter Family Fundraiser
Our Goal: $500:raised $230
May 14th, 2018, My 28th Birthday, we heard words no parent every wants to hear. “We see issues with your sons ultrasound.” We were 20 weeks pregnant with Liam when we found out he had CDH along with an Omphalocele. After meeting with Specialist, we were told our son didn’t have a real chance at survival. Not even 10 minutes after receiving this devastating news, a counselor came in to talk to us about termination. My husband and I knew this wouldn’t be an option. We started our research and did what was needed to get to St. Petersburg for the best care for our son. He was born September 9th, 2018 and was placed on ECMO within his first hour of life. He had his repair surgery the next morning. We have failed two extubation attempts, coded four times, and just had our second major surgery. Liam is still fighting. He proves to us everyday that there is hope. We still have a long road ahead of us, but we’ve been given more time with him than we thought possible. If we could help impact at least one other families life by helping them seek out the best care for their unborn child, it would make our journey even better. Tiny Hero offers that help and community support to families in the same position we were. If it wasn’t for the families in Tiny Hero sharing their stories, I don’t think Liam would be here today.
WHY TINY HERO?
With the right medical team, a baby that was given bleak chances at survival can survive and THRIVE! It is important that newly diagnosed families receive accurate information and support in researching well-equipped medical teams. We credit Tiny Hero for helping us to understand the diagnosis and for connecting us with the right medical team. Their work is saving lives of babies and is giving HOPE to their families. Tiny Hero also comes with a support network that has provided us with invaluable emotional support. This is a positive, supportive community of families who provide love and mentorship to new families in their darkest of days. We ask our family and friends to support Tiny Hero to help give hope and opportunity to the families who will walk this same journey.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.