The Cason Family Fundraiser
Our Goal: $500:raised $445
Five years ago, after over 12 ultrasounds confirmed how healthy our baby was, we heard the words no parent is ever prepared to hear: “I see a problem with your baby....” It was at that moment that C-D-H became more than just letters and we were told that our baby had a 50% chance of survival at best. 50% - a coin toss. In the weeks to follow we found Dr. Kays. We were told her chance of survival was great and her chance of needing ECMO was only 10%! It wasn’t until she was born crashing that we discovered she was much more sick than anyone predicted. By hour 27 she was on full ventilator support and the machine of last resort - ECMO. Dr. Kays said she wanted to buy the whole CDH package and that she was a very sick baby. He said he had done all he could and used every intervention he had, now it was up to her to want to get better. And thankfully with a lot of prayer our sweet baby girl put up the fight of her life. She spent 8 days on ECMO, 28 on the ventilator, and came home at an incredible 42 days old. Most babies as sick as she was spend months in the hospital, but she raced to the finish line. She had beaten CDH! It was during the week of discharge that our world shattered once again. We learned she had significant brain damage and that she may never walk or talk. But once again she beat the odds.At 5 years old our Tiny Hero is running, talking, in regular preschool, and is a miracle in every sense of the word.
WHY TINY HERO?
When we found out about Makenna’s CDH we were met with very little hope. No one knew what CDH was and those that did described it as devastating. We felt alone and lost as we began our fight. When Annie and Steve founded Tiny Hero, I knew I needed to get involved. I knew I needed to use Makenna’s story to give other families the hope that we didn’t have. There is real hope for CDH, but every day families are still told to terminate. Tiny Hero gives families the hope, direction, and knowledge needed to fight CDH. The money raised goes directly where it is needed the most - to newly diagnosed families. This year we financially helped over 100 families and countless more find hope. With your help we hope to help even more in 2019! Thank you so much for your love & support!
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.