The Dowdy Family Fundraiser

Our Goal: $1000 : RAISED $278

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OUR STORY

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This is Hazel Grace and we are from Georgia. We were about 20 weeks pregnant when we got the diagnosis of right side CDH. Our doctors in Atlanta gave us 0-5% chance of survival. Every time we walked into the office it just seemed like bad news was constantly being thrown in our faces. Our final straw was when the delivering OB looked at my husband and told him “Be prepared to watch her die.” I knew I had to do something and find someone willing to help us. I fought very hard to get her to Dr David Kays who at the time was in Gainesville, Florida. After our consultation and fetal MRI with him we received a call that flipped our world upside down: Hazel was bilateral instead of right sided. What did this mean for us? That was my first question. He said he had several other bilateral cases but wanted us to know that none of them had survived but not to let it scare me. He told me that he felt that Hazel could still pull through this. On August 5, 2015 my princess was born. She was very critical in the first few hours and placed on an oscillator first to help open her lungs, then on a conventional ventilator. She somehow miraculously skipped ECMO. She had surgery at 9 days old and came off of the ventilator at 13 days old. She spent a total of 43 days in the NICU and came home on oxygen and a diuretic for swelling. She is now a happy, thriving 3 year old with little to no issues from CDH! We are very thankful for the doctors and nurses who helped our sweet girl!


WHY TINY HERO?

Tiny Hero is a non profit organization that helps provide new families with we all desperately want and search for… HOPE! They help families financially and emotionally with support and resources to doctors who may be better equipped to handle their baby since most CDH families have to travel for care. All donations to Tiny Hero are tax deductible!

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HOPE STARTS HERE HOODIE

You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.

What is CDH?

Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).

CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→

Where does my donation go?

  1. Family Grants - We help families get to very best possible care and provide financial aid when needed.

  2. Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience. 

  3. Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.

Jacob Dunford