The Endicott Family Fundraiser
Our Goal: $1500
On July 13, 2005 I went in for a routine ultrasound excited to find out the sex of my baby, but instead I heard three words that would change my life forever. My precious baby boy had a left side congenital diaphragmatic hernia. I had never heard of this, but when the doctor told me I may want to consider terminating my pregnancy I knew it was something serious. Terminating was not an option so I went to a specialist at Shands. That's where I met Dr. Kays and was told my son had 70% chance of surviving. His stomach, liver, and some of his intestines were in his chest and his heart was displaced. It was an overwhelming day and I was so afraid of what was to come and if he would even survive. I remember thinking should I have even have a baby shower or set up a nursery. I just wanted to keep him safe in my womb forever. But after meeting Dr. Kays I knew this was the best place we could be. I had to move to the Ronald McDonald house 2 weeks prior to my due date. My baby was born 11/15/05 via emergency C section, he had his repair at 5 days old, and a patch was placed because the hole was too large to be closed without one. After a month in NICU we finally got to come home. It was a long, exhausting month so it was exciting but also frightening. My son has had some issues along the way. At 8 weeks old he had a bowel obstruction and two other small non life threatening surgeries due to CDH. He is now an active 13 year old who can’t be stopped.
WHY TINY HERO?
Those three words took so much from me, things that I can never get back. In 2005 social media was non existent so there weren't groups I could reach out to or anywhere to get help. Now that social media is around it is easier to reach out to others and find support. Tiny Hero has become a great group for families dealing with CDH and they are helping get babies to the best doctors for the best chance of survival and helping families during the most difficult time of their life. I know how hard it is and I wish I had access to this type of support group back then. Now times have changed and I can help others by sharing, educating and fundraising. It is a scary time and sometimes all hope can feel lost. So please consider donating to Tiny Hero for our Hope for the Holidays Fundraiser.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.