The Ermirio Family Fundraiser
Our Goal: $500:raised $50
Our gender reveal party gave us the best news, a girl! The next day at our 18 week ultrasound the doctor came in the room & said "Your baby has Congenital Diaphragmatic Hernia" & just stared at me waiting for a reaction. As a nurse myself I had never heard of CDH, but could tell it wasn't good by the doctors silence. When asked he told us her diaphragm didn't close causing her abdominal organs to move up into her chest & crush her lungs... "Would you like to terminate?" In 3 sentences our world was turned upside down. Two weeks later we had a second opinion & heard the same terrifying question... "Would you like to terminate?" The information on CDH from the doctors was devastating, the internet searches were even worse. It wasn't until we found out a fellow nursing school graduate had a son born with CDH a year earlier that we started to see a light in the darkness. She directed us to Tiny Hero who sent us information & success stories. That's right, I said success! They helped us realize that even though the journey would be difficult, termination was not the only option! Now 3 months, precious Hailey is a proud Kays Kid! Dr. Kays said we won the CDH lottery. Our girl was a miracle & best case scenario every step of the way! A very rare sac encased her organs keeping them from spreading throughout her chest, the hole in her diaphragm shaped so she didn't need a patch, she tolerated feedings so no Nissen surgery or G-tube. After only 28 days we got to bring our Hailey home!
WHY TINY HERO?
Tiny Hero gives families hope! They show the stories of others who have been on the CDH roller coaster. While there is still not a lot known of what causes CDH, Tiny Hero points families in the direction of the doctors who know the most about how to save them. They provide financial assistance to families who need to relocate so their baby can have the best chance & even offer a list of helpful questions to ask your surgeon. With how much detail & dedication they provide to help families who are going through one of the hardest times in their lives, please consider donating to this amazing organization!
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.