The Evanchick Family Fundraiser
Our Goal: $500 : RAISED $285
CDH blind-sided us. Our son Xander was born in a hospital without a NICU; there was no reason to think we would need one. All of our ultrasounds had been perfect. Twelve hours after he was born, his lung collapsed and x-rays revealed a left sided congenital diaphragmatic hernia. I had never heard of CDH before and I had no idea what it meant. There was no time to research treatments or who the best doctors were. He was intubated and rushed to the closest hospital with a Level IV NICU for emergency surgery. The doctor told us, "These are the sickest babies in the hospital."
WHY TINY HERO?
We hope our friends and family will donate so that more families, just like ours, can have hope too. Tiny Hero assists in getting families to where they need to be to have their baby, as many hospitals are not equipped to care for a baby born with CDH. In our case, the community and hope we found by reading stories and connecting with other CDH families was so valuable. It made all the difference for us and we want the opportunity to improve the next family’s experience.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.