The Gianluca Family Fundraiser
Our Goal: $2000 : RAISED $690
When my parent learned that I had CDH they were living in Panamá. After internet research, they discovered that the United States offered an intrauterine procedure called tracheal occlusion (FETO). They found an expert in Miami and the next day traveled for an appointment. When my mom was 32 weeks pregnant I had my first surgery while inside of her. During surgery they inserted a baloon inside of my trachea to close is off and force my lungs to grow. The hospital that did FETO didn't handle CDH treatment, so I had to go elsewhere to be born. This is where Tiny Hero came in. They helped give my parents direction and find Dr. Kays. Once I was born they discovered I had 8% of my diaphragm and 20% of my liver in my chest. I went on ECMO quickly and then spent nearly two months in the hospital. I am now 10 months old, off oxygen, and doing great.
WHY TINY HERO?
Finding Tiny Hero was the best thing that could happen to us. Thanks to them we reached the place where our baby had a chance to live, and gave us emotional and economic support. We want to ask for your donation so they can continue supporting many more families. Going through CDH is something very hard. With your help you can bring a little joy to many families who need it. Thanks in advance.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.