The Harper Family Fundraiser
Our Goal: $1000:raised $4160
“I have some serious concerns.” These are the words I’ll never forget, that I still hear in my head. We were at my 23 week follow up ultrasound appointment when Jackson was diagnosed with right-sided congenital diaphragmatic hernia (CDH). My entire world came crashing down. All of the joy and excitement of pregnancy was ripped away from me in this moment. I let myself grieve for exactly 3 days before I began my research. I joined support groups, reached out to other CDH families, which led me to Tiny Hero. Tiny Hero provided me comfort, support, and led me to Dr Kays! I felt like I could breathe again. I finally felt hope for my unborn son! We had a plan! We were moving to Florida and I would deliver there where I believed Jackson had the best chance for survival! But Jax had other plans and came 6 weeks early. I watched my baby fight for his life despite all the obstacles thrown at him in his first few days and I knew I needed to fight for him! I was going to find a way to get him to Florida. On Sunday, 5 days after Jackson was born, my prayers were answered. Dr Kays came to get my son. After more than 4 hours of transferring equipment, Dr Kays and his team were ready to transport Jackson, who was on ECMO, back to Florida. For the first time since Jax’s birth, I finally felt like I could exhale. I immediately felt a little bit of peace and knew this was the right decision for my son. After nearly 2 months in 2 different hospitals, I took my beautiful baby home!
WHY TINY HERO?
Tiny Hero means the world to me! They gave me hope when I had none, listened to me cry, told me their story, and introduced me to Dr Kays. They also helped me financially to get to Florida, twice. This charity helped to save my son’s life! If it weren’t for them, I never would have found Dr. Kays. They help families financially to relocate to be closer to their surgeons, provide emotional support, and help to fund research for CDH. Your donation could help someone who is going through what I went through less than a year ago. It could help to relocate a family to be closer to their surgeon to give their baby a better chance of survival. Your donation could help to fund research to improve the survival rates of CDH from 50%!
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.