The Hicks Family Fundraiser
Our Goal: $2500
The emotion of finding out my daughter had CDH was so strong in at a My life changed the moment we found out Lilah had CDH. All the excitement that comes with pregnancy was replaced with fear and concern. Every doctor told us the thing to do was abort Lilah, to kill her before she had a chance at life. That somehow it was more humane to kill my baby than fight for her. Our lives took another dramatic turn when my wife contacted Tiny Hero. We went from despair and tears, to excitement and HOPE! Tiny Hero shared that there was another side to CDH other than death. They helped us with the means to travel to a specialist that we had heard so much about. They helped us with a place stay so we didn’t have to break up our family of six. They gave us the Hope we needed when so many told us to give up and try again. My beautiful daughter Lilah Danielle, turns 2 this month. She has had multiple surgery’s, spent the first 4 months of her life in a hospital bed, and she on her 3rd diaphragm patch. She has been through so much these last two years, but you wouldn’t know it to look at her. She is off her oxygen, she recently had her feeding tube removed. She is full of life and fills my heart with joy. I owe so much to Tiny Hero, with out them I never would have met the Doctors and Nurses that wouldn’t give up on my daughter. Thank you Steve and Annie. God Bless your family and Tiny Hero
WHY TINY HERO?
When you donate to Tiny Hero, you are directly impacting another family in a positive way. If it wasnt for someone like you, Tiny Hero wouldn’t have been able to help my family to the existent they did. Tiny Hero is a team that has been affected directly by CDH and understands how important it is to get the quality care a CDH baby needs. Tiny Hero encouraged us and showed us there is real hope for CDH.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.