The Higgins Family Fundraiser

Our Goal: $2500 : RAISED $750

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OUR STORY

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It was a week before Christmas in 2014 when our daughter, Finley, was diagnosed in utero at 19 weeks with right-sided CDH. We walked out of the office of a "specialist" after being told that if our daughter even survived, she would likely have no quality of life. We were urged to terminate, told that we already had three healthy children, and should consider how this would "impact our lives." We left that office completely devastated, tears rolling down my face and my husband trying to be strong for me. Then the research began; so much research! We found Dr. David Kays, who gave us hope right off the bat for our girl and explained that CDH doesn't have to be a death sentence. Finley was born on April 27, 2015, and was an incredibly severe case. She spent 33 days on ECMO, a heart/lung bypass machine to keep her alive, and encountered quite a few serious complications during her four and a half month stay. But when we left, she didn't look back! She is now a happy, healthy, amazing three-year-old little girl who is absolutely thriving. Looking at her, you would never believe what she went through, or how close we came to losing her. As for how Finley impacted our lives? She is such a joy, and we can't imagine life without her! Our entire family became stronger. Strangers became some of our best friends and are now like family. She gave us a new perspective and appreciation for life. We are all better people because of her, and we are so blessed and thankful for our girl!


WHY TINY HERO?

CDH is not incredibly rare, but unfortunately most people have never heard of it and most doctors know very little about it. This leads to many families being told, like we were, that there is no hope and urged to terminate. Through extensive research, we found hope and the best care possible for Finley. Now Tiny Hero is spreading the word that there is REAL hope for CDH, that it's not a death sentence, making information readily available to frightened families, and aiding them in getting their unborn child to where they need to be. Tiny Hero is such a blessing to families who have just received the devastating diagnosis of CDH and don't know where to turn. If you find it in your heart to donate on behalf of Finley to help other babies, we thank you from the bottom of our hearts.

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HOPE STARTS HERE HOODIE

You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.

What is CDH?

Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).

CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→

Where does my donation go?

  1. Family Grants - We help families get to very best possible care and provide financial aid when needed.

  2. Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience. 

  3. Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.

Jacob Dunford