The Kime Family Fundraiser
Our Goal: $500:raised $50
The news of a new baby on the way is an exciting time for most. Our journey was a little different. The news that our first born was to be born with a condition called congenital diaphragmatic hernia was devastating. We were only given a 50% chance of survival. We were told that many complications could arise from this condition. I was too depressed to even put together his nursery before he was born. Due to his condition, we chose to relocate to a hospital 6 hours away from home in order to give him a fighting chance at survival. Upon delivery, we heard two small cries and then silence. The doctor whisked him away to get started on saving his life. Within the first two days he was placed on ECMO (heart and lung bypass), where he remained in critical condition for 10 days before we could even think about doing his repair surgery. It was immensely heartbreaking to visit our child who was fighting for his life. There was nothing we could do except pray. His hospital stay was a total length of 57 days. During those days, we faced many challenges and setbacks, including a serious internal bleed immediately following the repair surgery. After 6 weeks of only being able to place a hand on my child, I was able to hold him for the first time. What an amazing day that was! Our son is now 12 years old and doing excellent. He excels in school and plays the saxophone in the band. Besides having some pretty neat scars, you would never know he went through anything.
WHY TINY HERO?
When you hear that your child has CDH, it leaves you reeling. There are so many unknowns and so many heartaches to face. For many, knowing where to begin this journey is difficult. Tiny Hero plays a big part in helping families get the support that they need during this journey. We could not have made it without the extra support of our family, friends, and CDH community. That is why I am asking you to please help out. Please consider donating to Tiny Hero for our Hope for the Holidays Fundraiser.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.