The Koehler's Family Fundraiser
Our Goal: $800:raised $495
It was about this time of the year, we received the diagnosis after our 23 weeks anatomy scan. The next morning a high-risk doctor confirmed my daughter had birth defect call CDH, left side CDH. they went over our options, offering termination. Over and over I would hear the word termination and that I only had one week before it would be too late. I was told she would probably have other things wrong with her might not develop the same like other children. We didn't want to give up on her, so we decided to fight with her. First, we got referred to UCSF on 27 weeks. Bella’s liver already up, they told us she has 20-50 percent to survive. We felt so hopeless. Then we started to look for a second opinion, Tiny Hero who told us about Dr. Kays in Florida. Dr Kays gave us 85% chance. This was a best decision I have never made. She was Missing 98% of her left side diaphragm. ECMO and repair Surgery one days old. We truly believe if not Dr. Kays’s medical team, my daughter will not make today as healthy happy beautiful 8 months old. We so grateful and blessed!!!!
WHY TINY HERO?
TinyHero’s Hope for the Holidays campaign! All the money raised goes Directly helping future CDH families to advocate and get their babies to the best care possible. There are holiday hoodies, t-shirts, hats etc.... this nonprofit organization commitment is to spreading CDH awareness Please consider donating to Tiny Hero so that they can continue to assist families in fighting this diagnosis!!!
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.