The Looney Family Fundraiser
Our Goal: $250:raised $435
When we were 16 weeks pregnant we first heard the words "Congenital diaphragmatic hernia". We had a unique diagnosis in that we were not actually at the doctor's office. We were at my sister-in-law's business getting an ultrasound just for fun and to see our little guy's face. After the scan, she looked over the images, called us back in, and said she saw something a little concerning and wanted to take another look. We rushed back into her office where she proceeded to take more images for almost two hours. After pointing out to us what organs were what, even we knew something was VERY wrong about the placement. His stomach was up very high in his chest and his heart was pushed all the way over to the right side of his chest. We did some Google searches and everything seemed terrifying. We found the CDH on a Friday evening and knew it wouldn’t be until the next week that we could get in to see our OB for more information, so we decided to call a close friend of ours who is a NICU nurse to get her understanding of CDH. We knew it was really bad when we said CDH and heard a long pause followed by "I'm not going to sugarcoat this: it is really bad." Luckily our story doesn't end there. We found other families, the Tiny Hero website and survivor stories, and, most importantly, the surgeon that would save our son's life. Our son Beckham is now 21 months old, thriving, and living life to the fullest.
WHY TINY HERO?
Tiny Hero was an integral part of our journey to save Beckham. They provided so much hope during some of our darkest times. We would love it if you would consider a donation to our Hope for the Holidays fundraiser in honor of Beckham to help give hope to another family during their time of need.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go toward Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1,600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get the very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.