The Marin Family Fundraiser
Our Goal: $1000
It was so difficult to achieve this pregnancy; the only thing that we wanted was for these nine months to go by fast. It was not a common pregnancy, it was a surrogacy. We were so thrilled when we found out it was a girl! We had already chosen her name. The baby would be named JULIANA. During week 20’s ultrasound the obstetrician gave us bad news. Our baby girl would be born with a condition called Congenital Diaphragmatic Hernia. We did not understand the seriousness of the condition until we left the doctor’s office. We started investigating on the internet what was this condition about. Juliana had been given 50% chance of survival. We decided not to stay with that prognostic. We decided to fight for our daughter and for that reason we continued exploring more options. After a couple of days we found Dr, Kays in St. Petersburg, FL. We traveled up there and it was the best decision we have ever made. Dr. Kays and his team were the light among so much misery. Juliana was diagnosed with a congenital diaphragmatic hernia on the left side. Her life was still at risk, but with high chances of survival thanks to the action plan that Dr. Kays proposed. With that being said I was recommended to Tiny Hero.
WHY TINY HERO?
Tiny Hero is an organization devoted to help children who suffer the same condition as Juliana. It involves a community of parents willing to help other parents struggling with babies diagnosed with CDH. This group of people helped us financially during our stay in St. Petersburg, FL. Just like us there are many families that have been helped during these hard times. My family will be eternally thankful with this organization. Let’s continue helping other babies like Juliana by supporting the fundraising of this noble organization.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.