The Milli Family Fundraiser
Our Goal: $2000:raised $2800
Reagan was diagnosed at 24 weeks with CDH. When she was born, we were advised locally to do comfort care only. We found and amazing doctor in Florida, with the help of Tiny Hero and all their inspirational stories of thriving children. Reagan was on ECMO for almost 2 weeks and was intubated for a little over a month after birth. She had to be placed on ECMO in surgery, due to her unique anatomy and diaphragm. But luckily, due to the quick thinking of our amazing surgeon, she survived what was a very terrifying and critical situation. She also “coded” on several occasions, again due to her unique anatomy, and occluding herself via her ET tube. Once extubated, she was able to eat on her own, but we continue to struggle with this and weight gain. We are making progress in this. We want other families, just like ours, to find the hope and encouragement like we received. We have found wonderful support from our CDH family and Tiny Hero is the cornerstone of this. Now we have a thriving, energetic 18 month old.
WHY TINY HERO?
I encourage you to donate to this amazing charity because of the hope and encouragement they have given our family, and countless others. The support that they provide helps families being diagnosed with this devastating birth defect to find hope and support. They help in so many ways, financially and emotionally. They truly understand the devastation of hearing the diagnosis, as they have a child that was diagnosed with this as well. We want to be a small part in helping these families, just like Tiny Hero helped us.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.