The Mitchell Family Fundraiser

Our Goal: $1000:raised $665

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OUR STORY

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Our CDH story started at my 20 week ultrasound. It became very obvious very quick that something was wrong with our sweet little one. The doctor immediately referred us to a MFM specialist, where we soon got the devastating news that our son had congenital diaphragmatic hernia (CDH). The doctor gave our son a very grim prognosis and suggested we abort the pregnancy. Knowing that wasn’t a road we wanted to go down, we started researching doctors that could hopefully save our baby boy. Our first stop on this excursion was to Philadelphia. At CHOP we learned Tripp’s defect was very large, his liver was up, and he also had a large VSD. These doctors weren’t very enthusiastic about Tripp’s odds of survival either, so our hunt for the right doctor continued. Our next stop was Gainesville, FL to meet Dr. Kays. We had read up on Dr. Kays’ very impressive survival rates and success with CDH babies. We had a wonderful meeting with Dr. Kays, and joy... We had finally found our doctor!! James Emmett Mitchell III, Tripp, was born on November 8, 2012. It was single handedly the best and scariest day of my life. He was immediately intubated and rushed to the NICU. Early the next morning Tripp was taken into surgery to patch the hole in his diaphragm. Surgery was a success, but the next day Tripp was placed on ECMO. After 10 long days on ECMO and 10 more nerve racking weeks in the NICU Tripp was finally released from the hospital! Please help us continue to support all the Tiny Heroes!!


WHY TINY HERO?

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Having your child diagnosed with CDH is HARD... Having to relocate so your child can receive the very best care is HARD... Living in a new town is HARD... Staying at the hospital for countless hours every day is HARD... Having to spend holidays away from loved ones is HARD... It’s hard physically, emotionally, and financially. Tiny Hero is a wonderful organization that is striving to help the families of CDH patients. Tiny Hero is trying to lessen some of the hardships that these families may face when seeking out the best care for their tiny hero. This organization is helping many families through some of their hardest days. Please consider making a donation to Tiny Hero for our Hope for the Holidays fundraiser.


HOPE STARTS HERE HOODIE

You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.

What is CDH?

Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).

CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→

Where does my donation go?

  1. Family Grants - We help families get to very best possible care and provide financial aid when needed.

  2. Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience. 

  3. Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.

Jacob Dunford