The Noyes Family Fundraiser
Our Goal: $400:raised $410
We found out about Kendell's CDH at our 20 week ultrasound. No one gave us any indication that anything was wrong, but an hour after the scan we received a call from the doctor. Two days later, a specialist told us that our son had only a 10-20% chance of survival. That chance felt heavy and stripped of hope. It seemed impossible that our baby kicking in the ultrasound could already have people giving up on him. On the drive home from the specialist, we decided that WE were going to advocate for our son and would fight for every bit of that chance for survival. We were fortunate enough to be introduced to Tiny Hero a week after our diagnosis. They gave us hope and questions to ask the doctors we interviewed. After a lot of research and prayer we chose Seattle Children's Hospital. Our baby was more than a number to them; they believed in him as much as we did. Kendell was placed on ECMO on his first day of life. The next day, a doctor came to look at Kendell and said that he had seen him the night before and couldn't believe he was already doing so well. THAT is our goal with CDH - to teach the world to never underestimate these kids. Kendell is now a happy 3 year old who loves cars more than humanly possible. Looking at him you would never know what he has been through. That is why we love Tiny Hero: for providing hope for families & helping them get the treatment they need, and for redefining CDH by helping others see the limitless potential of what these kids are capable of.
WHY TINY HERO?
Tiny Hero gives CDH families the one thing that they need the most but are not typically offered when given this life-threatening diagnosis: hope. Hope that someone is in their corner and knows what they are going through. Hope that they can get to a hospital with better survival rates. Hope that their child can not only survive this diagnosis, but thrive.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.