The Ogletree Family Fundraiser
Our Goal: $1000 RAISED: $86
Our story began October 18, 2017, when we first heard the words congenital diaphragmatic hernia. We were so excited to see our little girl wiggle and kick. It was the first time her brother and uncle (a recent graduate from USMC basic) would see her. It was extra special that Uncle Connor was there since we knew he wouldn't be close for her arrival. Everything was going well – then we got the news. We were told we could terminate, as she may only have a 50% change to survive, but that was never an option, and we knew we would do whatever it took to save her. Through an amazing friend we found Tiny Hero, who changed the course of our journey. Because of them we were able to go to St. Petersburg to deliver our baby and hand her over to a fantastic surgeon and his incredible team, who with God's guidance, were able to save her. Kaidence was left side liver-up with only 10% of her left lung and 15% of her diaphragm. She spent 11 days on ECMO, and day on 18 was extubated. In the months we spent in Florida, we were tired and scared, but more than anything proud of the little girl full of fight. During this time, we met so many people we could now no longer live without. We were given a random group of strangers who became family. While we hate what she endured, we are so grateful for those we met who love Tait and Kaidence as their own, who share in our hard times and our victories. As we move forward in our CDH story, we are blessed in knowing she is here because of Tiny Hero.
WHY TINY HERO?
In October, 2017, we learned of three letters that would change our lives: CDH. Were told our baby would likely die, or if she survived, would have a poor quality of life. So we went home hurting, afraid – hopeless. We were told not to Google it, so we did what any self-respecting parents would. Googled anyway. We found story upon story of babies who died from what we learned our Kady had. Everything looked grey. That was until we were told of TinyHero.org. We clung to every word that said it didn't have to be this way, to the hope that only Tiny Hero gave us. Through them, we found Dr. Kays who because of his team, and God, we can now cling to a beautiful, wiggly little girl. During the holiday season, we all try to spread holiday cheer, but year-round Tiny Hero spreads hope.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.