The Patterson Family Fundraiser
Our Goal: $5000:raised $50
On November 2nd, 2016, Josh and I headed to our scheduled anatomy scan with Willow in tow. We were so excited for her to see her baby sister on the screen! Unfortunately, we got a lot more than we bargained for that day. At the end of the scan, the doctor came in the room and informed us that Charlotte had a right-sided congenital diaphragmatic hernia. He told us she had very slim chances of survival and recommended we terminate the pregnancy. We refused. Instead, we committed the remainder of our pregnancy to doing as much research as possible. We pushed through some major hurdles, almost had fetal surgery but didn’t, and then finally things shifted. We had been working so hard to make fetal surgery happen and things just weren’t working out for us. We felt so defeated. But then I had a call with a woman named Annie from Tiny Hero and from that day forward things just fell into place. We easily got into a Ronald McDonald House, we got 95% survival odds when we’d previously heard 60% or worse, and we found a school for Willow to attend while we were temporarily in Florida. God made it very clear that Johns Hopkins All Children’s was exactly where we needed to be for Charlotte.
Why we want our friends to donate to Tiny Hero
Receiving this diagnosis was single-handedly the hardest day of my life. But what we gained from it is worth every heart-breaking moment, every tear, every desperate prayer. We didn’t just get to bring our baby girl home with us, we brought home an entire new family, friends who we have bonded with in such a unique way, and blessings beyond all measure.
If it weren’t for this organization, our entire trajectory would have been different and we may not have our sweet Charlotte with us today. For that reason, we ask that you please consider donating to Tiny Hero for our Hope for the Holidays Fundraiser.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go toward Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.