The Pettigrew Family Fundraiser
Our Goal: $5000:raised $1670
My husband and I found out we were expecting in late January and were thrilled. We had our 20-week ultrasound when our doctor came in and announced it looked like Charlie had a diaphragmatic hernia. We asked, "Is it serious?" She replied with, "It can be very serious and I wouldn’t recommend Googling it." Of course, we left the office, Googled it, and were devastated. We went to an MFM specialist the same day and received confirmation that it was indeed a diaphragmatic hernia. Our doctor at the time was not supportive and gave us all of her experiences with CDH (not positive) and recommended termination. We began to research and found Dr. Kays in Gainesville, Florida. It seemed like a no brainer, but could Durham and I realistically relocate to Gainesville for 2-3 months? It wasn’t likely, so we explored other options at the time, like spending an entire day at Children's Hospital at Vanderbilt who sees a handful of CDH babies each year. But they didn't have the results that Dr. Kays did, and that was extremely clear after we visited him in Gainesville - he was our guy. I was induced at 38 weeks, Charlie was in the NICU for 54 days, had his repair on Day 3, was on a ventilator for 16 days, and was on oxygen for the first 4 months of his life. Charlie is now a thriving 4 year old and you would never know he had such a rough start to life. We are SO thankful for his medical team and all of those who gave us HOPE during those dark days.
WHY TINY HERO?
Tiny Hero is a resource that we wish was around when Charlie was diagnosed with CDH. If you googled CDH in 2014, 90% of the results were negative and gave incorrect stats on chances of survival. We were so lucky to have the means and support to move to Gainesville for the best care possible, but many families don't have the capability to stop everything and move across the country. This organization is allowing people to seek the best care for their babies, regardless of their financial situation. They also provide a support system, giving the parents hope on what has always been such a devastating diagnosis. They do this by connecting families and spreading the word: there is hope when your unborn child is diagnosed with CDH. TINY HERO is a bright spot during a dark time.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.