The Porter Family Fundraiser
Our Goal: $500:raised $575
We learned of Micah’s left-sided diaphragmatic hernia at our 12 week ultrasound. The doctor explained the 50% mortality rate and outlined our options to either terminate, or watch, wait, and hope for the best. Termination was not an option for us. As scary as it was, we were committed to carrying our baby for as long as God allowed, and we were going to do whatever we could to help him survive. After doing extensive research that weekend, we stumbled across a Tiny Hero video, which is where we learned of Dr. Kays. We just knew that he was the right doctor for us. We spent the next few days connecting with Tiny Hero families and speaking with Joy Perkins, Dr. Kays’ coordinator. We then made the decision to plan out our steps to get to Dr. Kays. Through incredible support from family and friends (and with many little miracles sprinkled throughout the next almost 6 months), we were able to make it to Florida so that Micah could be taken care of by the JHACH team. Micah was born with 45% liver up, 18% lung volume, and was missing 95% of his left diaphragm. He would not have survived had it not been for God’s mercy leading us to this incredibly gifted medical team. Today as I type this, we celebrate Micah’s 4-month birthday. He is a happy, smiley, social little guy who is only on minimal oxygen support and a few medications. We are forever grateful to Tiny Hero for supporting and caring for us as we navigated a pretty rocky road, and are excited to help give back!
WHY TINY HERO?
Tiny Hero does an excellent job providing HOPE for CDH families. Their empathy and care for us parents and our babies is so incredibly genuine. This organization provides emotional and financial support to parents who refuse to give up hope for their children. Additionally, Tiny Hero is doing a wonderful job changing the dialogue about CDH. Though this diagnosis is devastating, it is certainly not a death sentence. Our son is proof of that fact!
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.