The Rivera Family Fundraiser
Our Goal: $500 : RAISED $165
May 15th, 2018 - I was 14 weeks pregnant when Jordan and I went to see our OB for an ultrasound. We walked in thinking everything was going to be great! Our scan started out fine, but the tech became very quiet and scanned the same area again and again. After, our doctor came in with a somber look on his face. He sat down and said, “There’s something going on with your baby, and we don’t usually see it this early. Your baby has a congenital diaphragmatic hernia” He explained what it was and that we needed to be seen at a hospital that had ECMO capabilities. He then said words no parent wants to hear: “Your baby may not survive.” After that, everything was a blur. We walked out feeling defeated and lost. We were sent to University of Michigan at 16 weeks for more testing. The only joy we gathered from that appointment was that we were expecting a sweet baby girl, but we were told multiple times that we should terminate her and that she only had a slim chance of survival. We refused. That night we named our baby Olivia. My best friend sent us the link to Tiny Hero to research and we learned more about CDH on their website than I had from our doctors. We learned that CDH babies CAN have a chance to survive. Tiny Hero led us to Dr. Kays, and after reaching out to Joy that night, she called me the next day. After that, things fell into place and we relocated to Florida where our 3 pound 15 oz princess, Olivia, was born on October 16, 2018 at 36 weeks.
WHY TINY HERO?
The trajectory of our journey over the last five months is completely due to the Tiny Hero Organization. Olivia is here because Tiny Hero gave us hope and the ability to keep pushing toward finding the best care possible for our baby. They gave us hope through education, through stories of amazing babies who were surviving and thriving, and through financial assistance when we were worried about making ends meet. We have grown so much stronger through all of this, developed friendships and relationships that will last a lifetime, and we have seen our own tiny hero come into the world and one day (hopefully soon) will be able to take her home and give hope to other families, like ours, through Tiny Hero.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.