The Sanchez Family Fundraiser
Our Goal: $5000:raised $1320
It was January 21, 2015 and we were so excited for our anatomy scan. We had already had several ultrasounds and everything looked great. This day was different. We heard the words: congenital diaphragmatic hernia, birth defect, termination. Our world came crumbling down. We could not believe we had been offered to terminate our unborn baby. After much Google searching and seeing poor survival rates, we were left with very little hope. Yet that little hope lead us to search for the very best care for our son. We refused to give up and refused to terminate our baby. When we heard of Dr. David Kays, we knew we had to travel to him. Upon meeting him, we immediately felt a weight off our shoulders and REAL hope for CDH. Dr. Kays gave us an 85% survival rate as opposed to the 50% we had originally received. We dropped everything and moved 5 hours away, found a temporary apartment, and stayed for 5 hard months, all to give our son the best care possible. Our son endured a very hard 92-day stay in the NICU, including ECMO, an intestinal perforation, iliostomy and colostomy, pulmonary hemorrhage, infection and more. But by the grace of God Jaxson is now an amazing, thriving, healthy and curious 3-year-old big brother. We can’t imagine life without him, and thank God daily for his sweet and precious life.
WHY TINY HERO?
CDH is one of the hardest, if not the hardest, diagnosis most families will ever face. It is emotionally, mentally, financially, and physically draining. We were very blessed to be able to relocate five hours away to find the best care, but not everyone has that ability. Tiny Hero is there to continually provide hope to families upon diagnosis, and assist them in finding and relocating to the best care for their unborn baby. Donating to Tiny Hero is giving a family with this diagnosis the hope to bring their baby home. It is literally donating a ray of hope - and I promise you, once you’ve received a CDH diagnosis, a ray of hope is worth it all. So friends & family, I encourage you to donate this Holiday Season and give a new family the hope we received.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go toward Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1,600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.