The Slabaugh Family Fundraiser
Our Goal: $2000:raised $220
On December 8, 2016 my husband and I went in for our anatomy scan on our fourth child. We were excited to learn we were having another boy, but I couldn’t help but feel like something was odd during the scan. It wasn’t until 4 days later that I got a call from my midwife’s office teling me that something was horribly wrong. Our baby had a congenital diaphragmatic hernia. I immediately turned to Google and cried my eyes out all night long, sure my baby was going to die. A week later we had another ultrasound to confirm and I started doing research online. My doctors told me I had to deliver at Riley Children’s Hospital, but I found several other moms from Indiana who were traveling to Florida for care. I emailed Joy and Tiny Hero. Annie Zolman offered to talk to me on the phone and we talked for almost 2 hours. She gave me so much hope. I realized that God was pointing us to Florida for a reason. Tiny Hero helped my husband and I fly to Florida for a consult with Dr. Kays and we were sold with a 99% survival rate. We relocated at 37 weeks and stayed at the Ronald McDonald House. On April 20, 2017 our baby Lucas was born and I felt such peace knowing we were in the best hands having made the decision to travel to Florida. I never thought it would be possible to go so far away from our home in Indiana, especially with 3 other kids, but with the help of Tiny Hero we were able to travel to the best CDH doctor in the country.
WHY TINY HERO?
I am asking for donations to Tiny Hero this holiday season because I believe this is an organization that is changing the face of CDH. Most parents are given such grim news and told to terminate with little to no hope of survival. Tiny Hero is spreading the word that often there is hope and travel is possible to the best doctors and hospitals in the country. Tiny Hero helps families on a personal level, and personally helped my family so our decision to travel for care did not have to be based on financial reasons. They also provide emotional support through very difficult and uncertain times. You can feel confident that your donation is going to directly impact a family affected by this horrible birth defect and give them hope that their baby will survive and thrive.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.