The Vegter Family Fundraiser
Our Goal: $1000
This time 11 years ago we were heading to Gainesville for the unknown. This time 11 years ago I couldn’t even imagine what 1 day looked like let alone 11 years with Jayden. He is a pure blessing, a true fighter, and has one of the biggest harts of any 11 year old. Today is not his birthday but, like any other CDH parent, I start reminiscing of all the days and hours leading up to the birth. One minute I was the one keeping my baby alive and safe, the next moment I was the one praying the machine would be able to keep my baby alive and safe. Jayden was diagnostic at our 20 week appointment. We were told survivile was at about a 40% chance. We were also given the option of termanation. (That was not an option for us). 11 years ago research was limited but we were blessed to find Dr Kays. Jayden was born with a left sided Diaphramatic Hornia. He had .all of his organs from his stomach in his chest. He had his first surgery at the age of 3 days old and has continued the thrive with his 11th year birthday coming up December 4. His heighth has reached well above his age group however his weight is about in the 30th percentile. He has struggled in school however because he is a fighter he is totally fighting through it.
WHY TINY HERO?
11 years ago we did not have the knowledge of CDH and did not even know what direction to turn. Yes, we did do research and we were able to find Dr Kays I was not giving up till I found an answer. Tiny Hero’s has been able to get the word out about this unknown birth defect. When I was pregnet and people would ask, “do you know what your having?” My response, “yes, a boy and he has CDH”. I am a privet person however, I told everyone under the sun about my son being born with CDH. Why? Because I just wanted one person to say, “ I have heard of that and your going to be ok”. Tiny Hero’s have been able to get the word out to families. They are able to tell that Mom, “ I have heard about CDH and you will be ok”
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go towards Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.