The Wyatt Family Fundraiser
Our Goal: $500 : RAISED $506
Our son, Ethan Wyatt, is a thriving 3 year old who fills our lives with joy! People who stare into his captivating blue eyes and his charming smile find it difficult to believe that it was recommended we terminate our pregnancy after learning of his congenital diaphragmatic hernia (CDH). Instead, we sought more information before making this decision. That's when we found an amazing CDH specialist that had the answers no other doctors had. His name was Dr. David Kays. After meeting Dr. Kays, we had hope again. I delivered Ethan at 38 weeks just as scheduled. When he was born, his stomach, spine, small and large intestines, and 30% of his liver were in his chest cavity because only 5% of his left diaphragm formed. In less than 12 hours after he was born, we received a phone call to come down and see our son as this may be the last time we see him alive. He was doing very poorly. They had run out of all other options and Ethan's only chance for survival was ECMO. He was immediately put on ECMO. Slowly, he started getting better and better so he could have his repair surgery, when they were able to put his organs back in their place. After 8 days, he was taken off of ECMO. Finally, at 36 days old, I held my son for the first time. He spent 10.5 weeks in the NICU until he came home. Today Ethan is your typical toddler charming his way out of trouble. He loves learning and can tell you all about dinosaurs, mighty machines, and the phases of the moon.
WHY TINY HERO?
Hope is more powerful than fear. The Tiny Hero organization provides families with a real hope for CDH. They give hope to the hopeless parents for a future for their unborn child and provide a supportive community for families going through this diagnosis. Tiny Hero has financially assisted 100 families this year and provided hope and support to countless more. Our whole family volunteers with this organization in hopes of being that hope and support to other families. Your financial contributions allow us as an organization to continue to reach newly diagnosed families and support families throughout the diagnosis. I speak to countless families that have been told their child has no future before finding Tiny Hero; now their child is thriving with our support. Make a difference today.
HOPE STARTS HERE HOODIE
You can also support our family by purchasing this exclusive Hope for the Holidays item. All proceeds from the sales go toward Tiny Hero. Tiny Hero is a 501(c)(3) organization built to help support families with CDH children.
What is CDH?
Congenital diaphragmatic hernia (CDH) occurs in an unborn baby when there is a hole in, or incomplete formation of, the diaphragm (the muscle under the lungs that is responsible for breathing).
CDH affects about one in every 2,500 babies (1600 cases in the U.S. each year), and occurs as often as cystic fibrosis and spina bifida, yet most have never heard of it. On average, only 50% of these babies survive. Learn more about what is CDH→
Where does my donation go?
Family Grants - We help families get to very best possible care and provide financial aid when needed.
Community Support - We create videos, update our blog and website, and produce printed materials to help expand our message of hope to a larger audience.
Inspiring Better Care - We partnered with the Fore Hadley Foundation to help fund productive research efforts across the country.