AJ's CDH Story - LCDH
During our 13-week ultrasound, we were told that our little one would be born with congenital diaphragmatic hernia. AJ’s bowels and stomach occupied his lung cavity and later a small part of his liver moved up as well. 25 weeks later AJ was born, intubated and transferred to the Neonatal Intensive Care Unit (NICU) at the IWK in Halifax, Nova Scotia. Immediately his heart started to fail (which was not expected considering his heart looked
great during prior ultrasounds). We then found ourselves surrounded by many doctors, RT’s and nurses with one goal -- to save our little boy’s life.
AJ was immediately placed on ECMO and then transferred to the Pediatric Intensive Care Unit (PICU). Five days later, AJ’s heart function began to improve. He was now strong enough to undergo surgery to repair his hernia. He had his surgery two days later, and it was a success.
After spending two months in the PICU, AJ was transitioned to an inpatient unit on high flow oxygen. We stayed there for an additional 8 weeks before joining his older sisters at home, oxygen free! Today, he is thriving with the assistance of a feeding tube. He needs no oxygen support. He is pure joy, a happy and sweet little boy. We love him so much.