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“Caleb is now a 17-year-old high school honor student who is musically talented and a varsity baseball player." - Caleb T. CDH Story

We went home with more questions than we had going to that appointment. In a short amount of time, we learned what we could about this life-threatening birth defect. We also learned that Pediatric Surgeon Dr. David Kays had one of the highest survival rates in the world for a congenital diaphragmatic hernia repair.

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“To most outsiders, CDH is ‘limiting’, but for me, it is the complete opposite. My CDH drives me to do well in school…” - Angel's CDH Story

To most outsiders, CDH is ‘limiting’, but for me, it is the complete opposite. My CDH drives me to do well in school, and because I was lucky enough to have an amazing doctor like Dr. Kays, I am able to pursue all of the things that I love to do, things that most people would be surprised that I am able to do.

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" I was sad; I hurt, but I was going to fight." - Jayden's Story

At that moment, I did not care if my child was a boy or a girl; I didn’t care about my classroom; and I didn’t care how I was going to fit a baby into the mix.  I was sad; I hurt, but I was going to fight.  Julie did share with us we were having a boy, and Jon was so excited.  His words were, “Yes! A football player.”  My words, “I just want him to live.” 

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"She said her quality of life would not be worth living." -Kennedy's Story

Kennedy's corrective surgery was at 5 days old. There was enough diaphragm left to sew it together instead of using a patch. She did well but struggled with eating and reflux. At one month old, a feeding tube was placed and a Nissen procedure done. We left the NICU and headed home at 2 months old. 7 surgeries later and 11 years old, we are beyond grateful...!!!

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