Posts in Liver Down - Left Sided
“He knows what his abdominal scar means and what Dr. Kays means to him. We are so blessed and thankful for every day with our Tiny Hero!” - Aiden's CDH Story

Even after all Aiden has been through he is still a bright, sweet, imaginative and inspirational little boy! We have talked to him numerous times regarding CDH and his surgery. He knows what his abdominal scar means and what Dr. Kays means to him. We are so blessed and thankful for every day with our Tiny Hero!

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“Caleb is now a 17-year-old high school honor student who is musically talented and a varsity baseball player." - Caleb T. CDH Story

We went home with more questions than we had going to that appointment. In a short amount of time, we learned what we could about this life-threatening birth defect. We also learned that Pediatric Surgeon Dr. David Kays had one of the highest survival rates in the world for a congenital diaphragmatic hernia repair.

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“Griffin is a living miracle, but the road to recovery is not going to be an easy one.” - Griffin's CDH Story

Griffin was born a fairly healthy baby on May 30, 2016. All he had was a small heart murmur and jaundice. After a few days in the hospital we went home and were ready for the world with our healthy son.


We had never heard of CDH before July 10, 2016 when Griffin was 6 weeks old. That day has forever changed our lives, and we remember it perfectly. 

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Tuanny's CDH Story - LCDH

Tuanny is now a year old, already had his annual check up with Dr. Kays, and has done extremely well at home. He battled through a few colds and had a bad bout of stomach flu and an ER visit but reached some great milestones:  rolled over at four months, crawled around between six and seven months, and has been scaling the walls and walking with assistance since eight months.

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" I was sad; I hurt, but I was going to fight." - Jayden's Story

At that moment, I did not care if my child was a boy or a girl; I didn’t care about my classroom; and I didn’t care how I was going to fit a baby into the mix.  I was sad; I hurt, but I was going to fight.  Julie did share with us we were having a boy, and Jon was so excited.  His words were, “Yes! A football player.”  My words, “I just want him to live.” 

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"She said her quality of life would not be worth living." -Kennedy's Story

Kennedy's corrective surgery was at 5 days old. There was enough diaphragm left to sew it together instead of using a patch. She did well but struggled with eating and reflux. At one month old, a feeding tube was placed and a Nissen procedure done. We left the NICU and headed home at 2 months old. 7 surgeries later and 11 years old, we are beyond grateful...!!!

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