Once I knew this was going to be my life as a CDH mom and that there would always be medical ups and downs, I realized it's all about how you handle each bump in the road. Being a mom of a child with special medical needs made me so much more grateful for all the little things and milestones of Abel’s life!

Though our CDH journey, by some standards, may seem less severe, it was emotionally taxing. Yet, within our shared CDH community, I find solace and strength. My heart beats with yours, and I send prayers for healing to every CDH family.

When I tell people about his story, they are shocked that this is the same baby. He is a thriving, happy, and healthy little guy. Weston is a speedy crawler and pulls himself to stand. He just started cruising along tables and couches. Some of his favorite things include watching Miss Rachel on TV, chasing after our dog, playing with cars, eating French fries, and laughing at his big brother!

Looking back at Margaux’s journey in the hospital, we are reminded every day how strong and resilient our precious girl is and continue to be thankful for the lifesaving care she received.

Sonny has blossomed into a perfect, beautiful soul, reminding us that life's challenges can be conquered with unwavering faith and a positive mindset. Your presence in our lives is a daily reminder of the incredible strength that resides within you and the incredible love that surrounds you.

Since I have small lungs, I found hobbies I can do without too much strain. I enjoy puzzles, music, and almost anything crafty. I make my own holiday cards for my friends and family. Even though my lungs are scarred, I love to sing.

Vance is active and healthy — he plays ice hockey and soccer and enjoys competing in 5K runs. He is outgoing and social, always making others laugh and smile. His pediatrician once told us with CDH, no two stories are the same, and Vance is writing his own.

Thaigo has brought so much joy into our lives, and we will forever be grateful to the team of doctors and nurses who worked tirelessly for our Tiny Hero!

Joining Facebook groups and hearing all the positive stories gave me so much comfort and hope in the scariest time of my life, and hopefully, I can do that for others by sharing his story. He’s now two months old and doing great!

I'm so thankful for the care we received at John Hopkins. The entire CDH team on that floor is incredible and I will never forget them. I am also so thankful for the Tiny Hero community and the hope I received when I had none!

She's now a feisty two-year-old who keeps us on our toes. She loves to do anything in the water, including swimming, going to the lake and feeding the ducks, or, when we're lucky enough, going to the beach. We cherish every moment we get with Presley because it's one more moment we weren't guaranteed, and that makes every moment that much more special!

Our sweet miracle has overcome so much in such a short amount of time, and my husband and I are so proud of her. Being a CDH mom on top of being a first-time mom has been a rollercoaster, but this sweet face makes it all worth it.

The surgeon was shocked, as were we. First, to see identical twins both with CDH and then the same exact defect. What do you say to the man who saved your children's lives? I just thanked him over and over. A huge weight had been lifted off my shoulders. What a rollercoaster ride!

Kai is officially nine months and she is crawling, rolling over, and standing. She loves to dance and cuddle and play with her big sister. She always has a smile on her face as she continues to show the world how remarkably strong she is. She’s our Tiny Hero!

To think back to November 2022, when the doctors told us to terminate, to now a happy, healthy, thriving little boy is such a miracle. For all of those parents having to endure the same battle we did with CDH, don't lose hope. We have learned that CDH has a wide variety of outcomes. The numbers listed are just that, numbers. These warriors we are blessed with are that and so much more!

Remington just turned one! There have been many ups and downs in the last year, with constant doctor appointments, meeting new doctors, and two more surgeries since his diaphragmatic hernia surgery. Despite all he has been through this last year, he is among the happiest babies I know.

Ronnie spent 5 weeks in the NICU and made it home the night before Christmas. It was a miracle! We have had ER visits, urgent care, and hospital stays even after discharge. He is a Tiny Hero!

On October 8, after 25 days in the hospital, Baby Violet was discharged from the CDH unit with only 0.1 L oxygen flow. March 14 was her half birthday. She is still a great eater, and she has two teeth coming in. She cries when she isn't being held, but when she looks at me, she smiles bigger than I've ever seen before. I am so thankful for that smile every single day!

Birdie has been thriving, smiling, working hard with physical therapy and occupational therapy. Nothing can stop this sweet girl! We are beyond blessed and thankful for Tiny Hero and everyone we've met through her experience and look forward to educating and spreading awareness for the CDH community.

Blakelee is now a year old, standing by herself, eating table foods, on no medications, no oxygen, and no tubes. This journey has been far from easy, but it has been rewarding. There is hope!