Tiny Hero’s CDH family is continually growing and everyone’s journey is different. We share their stories to help you find real hope in yours!
Diagnosed with CDH at his 20-week anatomy scan, Calvin faced surgery and 32 days in the NICU before finally coming home to his family. His journey is a powerful reminder that hope can come in the smallest packages.
Hudson’s journey with CDH began with an unexpected diagnosis and a week of uncertainty before surgery. Today, he is thriving and showing his family just how strong a tiny baby can be.
Quillan’s family learned about his congenital diaphragmatic hernia at their 21-week anatomy scan. Born nearly four weeks early, he needed immediate medical support and surgery at just 7 days old. After 56 days in the hospital, Quillan finally came home. Today, he is 2 years old, active, climbing, laughing, and thriving.
When Riley was diagnosed with severe left-sided congenital diaphragmatic hernia before birth, his family was given difficult odds and faced an uncertain journey. From a fetal procedure and an early delivery to multiple surgeries and more than a month in the neonatal unit, Riley fought through every challenge. Today, he is thriving at home.
Maeve defied all expectations. After 20 days on ECMO and 80 days in the hospital, this tiny hero is now home in Oklahoma, reminding her family that hope can be stronger than the numbers.
Diagnosed with left-sided CDH at 20 weeks, Owen faced ECMO, surgery, feeding challenges, and 81 days in the NICU. Today, he is a thriving one-year-old, giving his family—and other CDH families—hope every step of the way.
Diagnosed with left-sided CDH at her 20-week anatomy scan, Emery’s journey began with uncertainty and fear. After ECMO, surgery, and 32 days in the NICU, this Tiny Hero came home and continues to thrive, reminding her family of the power of hope, strength, and perseverance.
CDH is a journey no parent ever wants to take. But once you find yourself on that journey, you hold on to hope, love, and the strength of your Tiny Hero. AJ taught us what it truly means to fight, to believe, and to never underestimate what these little ones are capable of.
Today, Lily is thriving, and we couldn’t be more grateful. Her journey has been filled with uncertainty, challenges, miracles, and so much hope. She is our little fighter and a reminder that even in the hardest moments, hope can carry you through.
To the families walking this road right now: you are not alone. Hold onto hope. Ask the hard questions. Advocate fiercely. Celebrate every milestone, no matter how small. Because CDH may be part of Liam’s story, but it does not define his future.
Morgan’s journey with congenital diaphragmatic hernia (CDH) began with an unexpected diagnosis after birth. From emergency care and life-saving surgery to a long NICU journey, Morgan’s story is one of resilience, hope, and the incredible strength of a CDH survivor.
When Naomi passed her room air test after weeks in the NICU, her family knew they were one step closer to something they had been waiting for — bringing their brave girl home. Born with CDH, Naomi spent her first month fighting hard. Today, at six months old, she is smiling, laughing, and thriving.
When Teagan was diagnosed with severe CDH before she was even born, her family faced an impossible decision. With less than 50% odds of survival, they chose to fight and Teagan fought right along with them!
When Bowie was born, no one was prepared for what came next. His anatomy scan had been normal. His mom had planned a home birth. But within moments of his arrival, everything changed and a journey none of them expected had just begun.
From a baby fighting for his life to a successful educator helping students achieve their goals, Reid's journey is a testament to resilience, determination, and the impact of exceptional medical care!