These tests would give a pediatric surgeon better understanding of our child's severity to help us make the best decision for our son.

Claire goes to weekly physical and occupational therapy which has focused on developing her core strength and combatting any gross motor delays she has due to the stroke. She has made tremendous progress and is meeting most milestones!

He is now an active (almost) 10 year old who loves drawing, writing, and sports. He brings joy to every room he enters with his spunky and funny personality, and we pray that his story will help others facing the same diagnosis.

My daughter was born november fifth 2009. She has Left CDH, her lung only matured to 25% on the left side. She was at shands UF for four months six days.

He had decided on a name for him as well, Christian Peter, which means strong rock. He then handed me a picture of our son that was taken by a very nice volunteer with the March of Dimes. I clung on to this picture for the next 24 hours as I lay in my bed, unable to visit my sick baby boy.

As he grew older, he became sick less often.   Ian grew with no physical restrictions. He played soccer and basketball when he was younger, would ride his bike, his skateboard, and would swim and go surfing. He would get more winded than some children when he would run long distances, but there was never anything he wanted to do that he couldn’t.

Dakota is now 7 years old and doing great!  She just started gymnastics and does great in school!  She has no restrictions, no hospitalizations, and no delays since she turned 2 years old and finally caught up!