Posts in Liver Down - Left Sided
"Gabriel’s story is unique because he not only went undiagnosed all throughout my pregnancy, but he was diagnosed by chance at 4 months of age. " - Gabriel's CDH Story

She tried to look at me with a reassuring look, but I knew something was very wrong. I said through tears in my eyes “just tell me.” She said she could not hear any breathing sounds on the left side of his body.

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“He knows what his abdominal scar means and what Dr. Kays means to him. We are so blessed and thankful for every day with our Tiny Hero!” - Aiden's CDH Story

Even after all Aiden has been through he is still a bright, sweet, imaginative and inspirational little boy! We have talked to him numerous times regarding CDH and his surgery. He knows what his abdominal scar means and what Dr. Kays means to him. We are so blessed and thankful for every day with our Tiny Hero!

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“Caleb is now a 17-year-old high school honor student who is musically talented and a varsity baseball player." - Caleb T. CDH Story

We went home with more questions than we had going to that appointment. In a short amount of time, we learned what we could about this life-threatening birth defect. We also learned that Pediatric Surgeon Dr. David Kays had one of the highest survival rates in the world for a congenital diaphragmatic hernia repair.

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“Griffin is a living miracle, but the road to recovery is not going to be an easy one.” - Griffin's CDH Story

Griffin was born a fairly healthy baby on May 30, 2016. All he had was a small heart murmur and jaundice. After a few days in the hospital we went home and were ready for the world with our healthy son.


We had never heard of CDH before July 10, 2016 when Griffin was 6 weeks old. That day has forever changed our lives, and we remember it perfectly. 

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"Braxton quickly realized the house wasn’t the quiet hospital he was use it.  He has 3 big siblings!" - Braxton's CDH Story

On 1-18-18 Braxton arrived and wow did we fully understand the importance of being with Dr. Kays. Braxton crashed on day 2 and went on ECMO.  He had his CDH repair on day 3 and after 7 days of Ecmo he was off. 

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"Since we have been home things have been wonderful and we are trying to live life like we have a "normal" baby" - Carter's CDH Story

We were so excited to be expecting our first baby. Everything had been so perfect until a 30 minute ultrasound turned into an hour and half. I knew something was wrong, but all they would tell me was they couldn’t get the pictures they needed.  Once we met with the doctor we learned he had a Diaphragmatic Hernia. 

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"We heard the news through a filter: all we gathered was "defect," "severe," and "surgery." - Tuanny's CDH Story

Tuanny is now a year old, already had his annual check up with Dr. Kays, and has done extremely well at home. He battled through a few colds and had a bad bout of stomach flu and an ER visit but reached some great milestones:  rolled over at four months, crawled around between six and seven months, and has been scaling the walls and walking with assistance since eight months.

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"Feedings started off a little rocky, but once she got the hang of it, there was no stopping her." - Reese's CDH Story

Dr. Kays spent 3 nights at her bedside doing everything possible to keep her off ECMO. He informed us that she was a lot sicker than we anticipated and was not improving much, so on day 4 he decided to do her repair surgery.

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" I was sad; I hurt, but I was going to fight." - Jayden's Story

At that moment, I did not care if my child was a boy or a girl; I didn’t care about my classroom; and I didn’t care how I was going to fit a baby into the mix.  I was sad; I hurt, but I was going to fight.  Julie did share with us we were having a boy, and Jon was so excited.  His words were, “Yes! A football player.”  My words, “I just want him to live.” 

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