Posts in Liver Up - Right Sided
"It was a risky decision, but I believe he not only survived, but also thrived" - Jackson's CDH Story

Friday morning I got the call from Joy! “We’re coming to get Jackson.” Dr Kays decided to make the trip to Baltimore at the tail end of a nor’easter to transport my critical baby on ECMO back to JHACH. 

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"Several weeks later, when Myla was taking full feeds and steadily gaining weight, they started all of her discharge tests. Everything looked great and discharge day was here!" -Myla's CDH Story

A parent’s worst nightmare is hearing something is wrong with their child. Our sweet unborn baby had been diagnosed with a Congenital Diaphragmatic Hernia (CDH). Casey and I had never heard of this before.

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"But the most important piece of information he gave us was his prediction that Charlotte would have a 95% chance of survival." - Charly's CDH Story

I don’t remember much about our conversation except for that she asked me what Charly’s name was. She asked if we had other kids, how old, what her name was. She asked how long we’d been married. We were people to her. Not another opportunity to experiment. We scheduled a call with Dr. Kays within a few days and spoke with him for over an hour.

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"She told us CDH was the worst-case scenario, and that we would talk more about this if in fact this was what it was." - Reagan's CDH Story

What was supposed to take 3-4 hours turned into about a 10-hour surgery. Dr. Kays had said in his years of experience, he had never had to put a baby on ECMO in the middle of surgery, and he had never encountered anything like her diaphragm and her other anatomical abnormalities that she had.

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