Maeve defied all expectations. After 20 days on ECMO and 80 days in the hospital, this tiny hero is now home in Oklahoma, reminding her family that hope can be stronger than the numbers.

Diagnosed with left-sided CDH at 20 weeks, Owen faced ECMO, surgery, feeding challenges, and 81 days in the NICU. Today, he is a thriving one-year-old, giving his family—and other CDH families—hope every step of the way.

Diagnosed with left-sided CDH at her 20-week anatomy scan, Emery’s journey began with uncertainty and fear. After ECMO, surgery, and 32 days in the NICU, this Tiny Hero came home and continues to thrive, reminding her family of the power of hope, strength, and perseverance.

CDH is a journey no parent ever wants to take. But once you find yourself on that journey, you hold on to hope, love, and the strength of your Tiny Hero. AJ taught us what it truly means to fight, to believe, and to never underestimate what these little ones are capable of.

Today, Lily is thriving, and we couldn’t be more grateful. Her journey has been filled with uncertainty, challenges, miracles, and so much hope. She is our little fighter and a reminder that even in the hardest moments, hope can carry you through.

To the families walking this road right now: you are not alone. Hold onto hope. Ask the hard questions. Advocate fiercely. Celebrate every milestone, no matter how small. Because CDH may be part of Liam’s story, but it does not define his future.

Morgan’s journey with congenital diaphragmatic hernia (CDH) began with an unexpected diagnosis after birth. From emergency care and life-saving surgery to a long NICU journey, Morgan’s story is one of resilience, hope, and the incredible strength of a CDH survivor.

When Naomi passed her room air test after weeks in the NICU, her family knew they were one step closer to something they had been waiting for — bringing their brave girl home. Born with CDH, Naomi spent her first month fighting hard. Today, at six months old, she is smiling, laughing, and thriving.

When Teagan was diagnosed with severe CDH before she was even born, her family faced an impossible decision. With less than 50% odds of survival, they chose to fight and Teagan fought right along with them!

When Bowie was born, no one was prepared for what came next. His anatomy scan had been normal. His mom had planned a home birth. But within moments of his arrival, everything changed and a journey none of them expected had just begun.

From a baby fighting for his life to a successful educator helping students achieve their goals, Reid's journey is a testament to resilience, determination, and the impact of exceptional medical care!

Today, Ozzy is doing wonderfully. We are incredibly grateful to the doctors, respiratory therapists, nurses, and everyone who cared for him throughout his journey. Their expertise, compassion, and dedication helped save our son's life, and we will never be able to thank them enough.

I will never stop telling Ella Grace's story. You amaze me every single day. You have taught me to be hopeful, to stay positive, to lean on my faith, and to push the negativity aside. If I could go back to the day I found out about your diagnosis, I would remind myself every day that these babies do make it, and there is hope.

After 30 days in the hospital, Wells came home—and today, you would never know how much he went through. He is exclusively breastfeeding, always smiling, and completely adored by our entire family.

What I do know is this: I’ve been able to live a full and happy life. And I wouldn’t trade it for anything. The world can feel overwhelming, and a CDH diagnosis can make it even more so. But I hope my story reminds you that there is hope. I’m living proof. And I’m living life to the fullest.

Evelynn is 2 1/2, off of oxygen, still g-tube dependent, and having the time of her life! She is learning to walk, talking constantly, and trying new foods and figuring out how to eat with her mouth. She loves playing with her big brother, snuggling with her daddy and me, and telling everyone what to do.

Every single day, LJ chose life. On the 81st day, we were told our miracle boy was going home. The journey wasn’t over—he came home on oxygen and with an NG tube—but he came home. LJ is proof that even in the darkest moments, miracles can grow from unimaginable pain. Today, he is one year old and thriving.

At just 9 days old, Kalena underwent life-saving surgery for left-sided CDH. Complications led to a pleural effusion and emergency treatment, followed by months of procedures and recovery. After a five-month hospital stay, she finally came home. Today, Kalena is a thriving 8-year-old, and her family is forever grateful to the team who saved her life.

All in all, I had six surgeries during pregnancy, and my son had two major open surgeries in the first two months of life—but we are both finally healthy. He is seven months old now and doing so well. He beat literally every odd imaginable. He still has his G-tube, and we work with an OT to help him transition to oral feeds.

Nathaniel’s CDH had significant complications and secondary diagnoses that made his recovery long and difficult. Our CDH warrior went through seven surgeries in his first year of life. We spent a total of 415 days in the NICU. We are beyond happy to be home with our son today!