Leo’s CDH Story

Before I was born, my parents were told I had a very low chance of survival. Even if I did make it, they were warned I might spend my life dependent on feeding tubes and medical support—never truly living a “normal” life.

Well, nearly 20 years later, I’m proud to say I’ve proven those expectations wrong.

I’m now 19 years old and attending the University of South Florida in the Honors Program. I’m technically a second-year student, but credit-wise, I’m already a junior. I live in an apartment near campus, where I spend time watching TV with my roommates or relaxing in my room reading comics.

Today, the only signs of my CDH are a small scar on my neck and a larger one on my stomach—which I like to joke came from fighting a bear.

My parents and I are incredibly grateful that I’m still here and thriving, especially considering how difficult things were before and shortly after I was born. While I don’t remember much of my own CDH journey, that part of the story belongs to them—the ones who worked with doctors and fought for my life during that first year.

What I do know is this: I’ve been able to live a full and happy life. And I wouldn’t trade it for anything.

The world can feel overwhelming, and a CDH diagnosis can make it even more so. But I hope my story reminds you that there is hope.

I’m living proof.

And I’m living life to the fullest.