CDH Stories
Amelia’s CDH Story
Amelia is almost four months old and absolutely thriving and doing ALL the growing baby things. I look at her with such admiration because all I see is strength in such a little body. Her big brother is her best friend, her dog is her biggest protector, and her parents are grateful each and every day for our wonderful, resilient - Tiny Hero.
Maximilian’s CDH Story
For the families who get this diagnosis, with the right team, strength, support, love, and belief in a positive outcome, you will emerge in a world that seems unimaginable at first. The outcome is so different from the beginning. It's a slow, brutal path in the starting weeks and months, but seeing this blessing in action now makes those days feel like a distant memory.
Weston’s CDH Story
When I tell people about his story, they are shocked that this is the same baby. He is a thriving, happy, and healthy little guy. Weston is a speedy crawler and pulls himself to stand. He just started cruising along tables and couches. Some of his favorite things include watching Miss Rachel on TV, chasing after our dog, playing with cars, eating French fries, and laughing at his big brother!
Charlotte’s Story - Congenital Diaphragmatic Hernia
If I could talk to myself or someone else in my position during those dark few days shortly after diagnosis, I would tell her that there can be a happy story. You can find strength you did not know you possessed, and you can find support to get through the long days. Charlotte is still full of fire. I can't wait until she is older and I can share with her just how amazing she really is!
Rylee’s Story - Congenital Diaphragmatic Hernia
My name is Samantha, and my fiancé's name is Mark, and we're the parents of our wonderful daughter, Rylee. Now that we’re home, she gets OT and early development therapy. She also sees a neurologist, cardiologist, and GI doctor. She is a Tiny Hero!
Asaiah’s Story - Congenital Diaphragmatic Hernia
Asaiah was born at 32 months and 2 weeks and has been fighting ever since. He is now 2 months old now and currently taking 80 ML. He is stable on CPAP and we might consider rehab for him in the near future. He is our Tiny Hero.
Oliver’s Story - Congenital Diaphragmatic Hernia (CDH)
Oliver is our little warrior and so very smart. He can give a high five, clap, and sit up all by himself. He is the happiest, sweetest little boy in the world. He has been through so much in his short life here, and he is the absolute strongest baby!
Avery’s Story - Congenital Diaphragmatic Hernia (CDH)
We never expected her CDH journey to be that quick, but we are so lucky that it was. You would never know what that first month of her life entailed, and there will never be enough thank you’s in the world to thank Dr. Hedrick and every other doctor/nurse who took care of her. She is our strong and brave little girl, and she has been a rockstar since day one.
Jaxon's Story - Congenital Diaphragmatic Hernia (CDH)
Jaxon recently turned one and is the happiest boy we have ever seen. He brings so much joy into our lives every single day. He's had some minor bumps in the road along the way, but each time he has bounced back stronger than before. He continues to amaze us every day with how far he has come, given where he started.
Jax's Story - Congenital Diaphragmatic Hernia (CDH)
But in this first year of life, if there is anything Jax has proven, it’s that he is a damn survivor. He has and continues to beat the odds and he proves everyone wrong ALL THE TIME. Watching him succeed has been so humbling, so inspiring, and has encouraged me to have faith in a tiny little human.