At exactly three weeks old, Addison got to come home. She is now two months old. She loves all the attention and is starting to find her voice. I know when you get the diagnosis, the worst thoughts come to mind, but life does not always turn out to be the worst-case scenario. I am so proud of my CDH warrior!

Lillyth Fyre is a miracle. Every CDH kid is, in my opinion, no matter what their outcome is. We've learned to pour all of our love onto this child because we understand that tomorrow isn't promised. It's been a terrifying journey with moments of pure love and joy.

If you take anything from this long story of ours, it's that your kid isn't the only one that survives CDH; you do, too. None of this is your fault, and you're doing the best you can, so allow yourself some grace.

Cooper is our miracle and our CDH warrior! He is currently 8 months old, fully weaned from the NG tube, and doing so well!

Now she is 17 months. She gets her checkups every month with her surgeon, runs around, likes to eat. I am so grateful to have her here with us. She is a blessing. She has gone thru so much but she is strong. We Love our Tiny Hero.

He is almost a year old now only on oxygen at night and 2 of his 4 medicines are being weened down so we are almost at 2 medications a day. I can’t wait to see where my little warrior goes from here!!