Upon finding out your child has a Congenital Diaphragmatic Hernia, one of the first big decisions you will likely have to make is whether or not to do an amniocentesis. This decision can feel overwhelming and confusing, but we are here to help you weigh the pros and cons. 

There's no doubt about it – a CDH diagnosis will change your life forever. It will be scary, emotional, overwhelming, and probably feel like a rollercoaster ride full of intense ups and downs at first. But through it emerges blessings you never expected and strength you never knew you had.

Sensory play doesn’t have to be hard or complicated. It can be easily accomplished through play using basic items in your home or your backyard! Remember to have fun with it too!

When a baby spends a great deal of time in the hospital early on with many altered sensory experiences, it may lead to delays in oral and fine motor skills. It is essential to give your CDH baby a lot of sensory experiences and work on building up strength in their hands to combat any potential delays they may have.

There are lots of things you can do at home with your CDH child to help develop their fine motor skills in combination with the directions from your doctor and OT. Try out some of these at home to help with any delays your child may be experiencing.

One of the hardest parts of staying at a hospital long-term can be having to spend the holidays away from our loved ones. Even though you may not be able to recreate every tradition or the heart-warming feeling of being at home, there are many things that you can do to bring joy to your family and make the most of the hard days in the hospital! 

Costumes for medical kids can sometimes get a bit tricky. Every child should feel included in the fun, so with a little extra craftiness, all our Tiny Heroes can join in whether you are in the hospital with your child or at home.