My story is one of survival, gratitude, and hope. CDH has shaped my life in ways I never could have imagined, from the care I received as a newborn, to the career I chose, to the family I am now blessed to have. I carry deep appreciation for the medical teams who saved me, the resilience of my parents, and the families who continue to face this diagnosis today.

Today, Sofia is 3 ½ years old. She is strong-willed, vocal, stubborn, and a leader. She knows what she wants and fights to get it. I have no doubt these traits helped her fight for her recovery. Sofia’s yearly follow-up appointments and x-rays have all been met with good news, so we continuously pray it stays that way.