Diagnosed with left-sided CDH at 20 weeks, Owen faced ECMO, surgery, feeding challenges, and 81 days in the NICU. Today, he is a thriving one-year-old, giving his family—and other CDH families—hope every step of the way.

I didn’t have time to research or prepare myself for David’s diagnosis. I left the NICU under the impression that he would be a “normal” baby. When I finally felt ready to learn more about what CDH truly is, I discovered Tiny Hero. While hearing others’ stories has been emotional, it has also provided me with comfort, knowing that I am not alone.