CDH Stories
Quillan’s CDH Story
Quillan’s family learned about his congenital diaphragmatic hernia at their 21-week anatomy scan. Born nearly four weeks early, he needed immediate medical support and surgery at just 7 days old. After 56 days in the hospital, Quillan finally came home. Today, he is 2 years old, active, climbing, laughing, and thriving.
Ronnie’s Story - Congenital Diaphragmatic Hernia
Ronnie spent 5 weeks in the NICU and made it home the night before Christmas. It was a miracle! We have had ER visits, urgent care, and hospital stays even after discharge. He is a Tiny Hero!
Hayden’s Story - Congenital Diaphragmatic Hernia (CDH)
We still can't believe Hayden is doing as well as he is today. He has oxygen support at ¼ liter and does have a G-tube, but it seems pretty minor compared to what they were expecting for our little guy. He is both a miracle and a blessing, and we thank God every day that he proved everyone wrong.
Alexa’s Story - Congenital Diaphragmatic Hernia (CDH)
Alexa is a “spicy,” sweet, fun, determined, and loving little girl. It is so fun to see this personality blossom, knowing that it had a big part of her drive/success in her NICU days. She currently goes to preschool and loves it!
Bennett's Story - Congenital Diaphragmatic Hernia (CDH)
Before our appointment with maternal fetal medicine the following Monday, we gave him a name - Bennett James - we wanted everyone to know that no matter what we were told at that appointment, he was important, and he mattered.