CDH Stories
Ella Grace’s CDH Story
I will never stop telling Ella Grace's story. You amaze me every single day. You have taught me to be hopeful, to stay positive, to lean on my faith, and to push the negativity aside. If I could go back to the day I found out about your diagnosis, I would remind myself every day that these babies do make it, and there is hope.
Ellie’s CDH Story
Going into my 20-week scan, I was completely unaware of what to expect. I even had additional follow-up scans because they couldn’t locate the liver. All the doctors cleared me and said everything looked good, but now I realize I was naïve and should have asked more questions. In hindsight, I would advise others to be curious—no question should feel too out of the ordinary.
Kai Michael’s Story - Congenital Diaphragmatic Hernia
To think back to November 2022, when the doctors told us to terminate, to now a happy, healthy, thriving little boy is such a miracle. For all of those parents having to endure the same battle we did with CDH, don't lose hope. We have learned that CDH has a wide variety of outcomes. The numbers listed are just that, numbers. These warriors we are blessed with are that and so much more!
Hudson’s Story - Congenital Diaphragmatic Hernia (CDH)
If you didn't look at my X-rays or the scar on my belly, you would never know there was anything wrong with me. I did so unexpectedly wonderful that the hospital kicked me out just before I turned 3 weeks old. The doctors have no explanation as to why I did so well. Now, do you believe in miracles? I'm living proof of one!