CDH Stories
Leevi’s CDH Story
Leevi continues to amaze us daily, hitting milestones and reminding us just how powerful miracles can be. Our family thought we were complete—but Leevi proved that sometimes the most unexpected blessings become the most extraordinary stories!
Máximo’s CDH Story
Máximo still carries a scar on the left side of his chest, a visible reminder of his battle and his surgeries. He also has to see a pulmonologist and a surgeon every 6 months to monitor that everything is stable. Today, at almost 3 years old, Máximo is a child full of life. His smile reminds us that miracles do exist and that every CDH child is a true hero.
Noah’s CDH Story
Noah is now a very happy and healthy little boy. Without the help of all the incredible nurses, surgeons, doctors, ECMO specialists, and the Heart Link Charity, we wouldn’t be where we are now. We will always be eternally grateful.
Dawson’s CDH Story
Now, at two years old, it's hard to believe Dawson ever faced this battle. He is strong, resilient, and busy. His favorite toy is any kind of ball (or anything he can find to throw!). Dawson is thriving in all areas of life, and we are so very grateful.
CC’s CDH Story
We cannot thank the CDH staff at Boston Children's Hospital enough! They saved CC's life, and after almost 114 days, we are home.
Sinead’s Story - Congenital Diaphragmatic Hernia (CDH)
We are so proud of Sinead, she never let CDH get to her, and she continues to amaze us every day. To all parents that have CDH kids - it can sometimes be a long battle, but well worth it!
Oliver’s Story - Congenital Diaphragmatic Hernia (CDH)
Oliver is the happiest and bravest little boy I know, and he's never let any of this stop him! He's in school and has lots of friends. He is so funny, loves life, and is obsessed with trains. He is truly my Tiny Hero! And an absolute inspiration to everyone who knows him.