CDH Stories
Anya Mae's Story - Congenital Diaphragmatic Hernia (CDH)
She loves Doc McStuffins and says she wants to be a "Baby Nurse" when she grows up. She is the complete opposite of what the original doctors said. She is not neurologically damaged. She is a survivor.
Joseph's Story - Congenital Diaphragmatic Hernia (CDH)
We were devastated. I can remember sobbing all the way home and my husband holding it together until he talked to his dad. When he said, “Dad, it’s not fair” and his voice broke, I could have ripped my heart out.
Leo's Story - Congenital Diaphragmatic Hernia (CDH)
I couldn’t believe this was happening to me. I cried for weeks. I couldn’t look at babies, kids, or other pregnant women without my heart breaking.
Trenton's Story - Congenital Diaphragmatic Hernia (CDH)
No ECMO was needed, and he continued to thrive. He was a little slow with feedings, but finally picked it up. I was able to hold him for the first time 2 weeks after he was born. I also was able to pump the whole time he was in the hospital, so he received it via tube and then bottle once we got to that point.